Oct 01, 2019 6:45 PM
Geoff Russell
Scarlet's Smile Fundraiser

Scarlett is a beautiful little Perth girl, with the biggest heart and most infectious smile. However, because of a very rare genetic disorder, she faces a number of challenges and unfortunately the mutation on her GNB1 gene has left her severely disabled.

She has something called Hypotonia, which means she is very floppy and has low muscle tone. Scarlett was also born with a cleft palate, club foot, and a level of vision similar to legal blindness, as well as being at high risk of seizures. Scarlett is two and a half years old, but unfortunately she cannot roll, sit, crawl or stand unassisted, and has been diagnosed with global development delays, cortical vision impairment, epilepsy and sensorineural hearing loss.